It's official. I'm stuck. alone. I can leave my room and walk the hall if I wear a gown and gloves. woo. friggin'. whoo. anyone who comes in my room has to wear special gowns and gloves. CDIFF is what they are calling it. Apparently everyone has it in them and it only shows up in immunosuppressed people. Of course, I gotta get it. One nurse said 5 days stuck. Doc says 10. I'll ask the "team" tomorrow. Ron left. Went home tonight. Gonna miss him. Hard having someone so close to your side all the time just be gone. crying now. this is shitty. He's going to go get Hailey tomorrow and spend some time with her. Hopefully get the web cam up at grandma's house so I can talk to them and see them both.
Can't type anymore. Hands really hurt still.
Love you Ron. Miss you already. Miss you Hailey. Thank you Lizzy for coming and staying the other night. Thank you mom and Breanna for coming to see my that meant a lot.
Love you guys. Can't wait to feel better.
Love,
Dawn
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Orcas Island
This was a good day! Sept. '08
Me and my mommy.
isn't she the cutest!
Just had a biopsy
We had lots of fun in the back seat together! March '07
No idea what was in store for me!
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My Story
My name is Dawn Robertson, I am 28 years old. I live in Marysville, WA. My daughter Hailey is 6 years old. My husband and I have been together for 12 years. He is my rock. Ron, my husband, has been so strong through our journey. But boy are things getting tough. It all started in November 2007, I went in for a random check up, I had just gotten insurance through my work. I had only went in there to have my back checked out, I have arthritic spurs in my spine, had been having a lot of pain and thought with the insurance now I better get checked out. Not being a big fan of doctor’s offices I wanted to get in and out. The doctor at the Everett Clinic insisted I have a physical, considering I didn’t recall the last time I had one he thought it would be a good idea. After a few pokes and prods the doctor feels my neck…. A good size mass is in the right side of my neck…. What’s that? I ask, I don’t know, he says…. and this begins the story of Refractory Hodgkin's Lymphoma.
May 2009
It's not ending.... 4 different chemo treatments, 2 different radiation treatments, a stem cell transplant, and they still are not sure if they "got it".
October 2009
Still haven't "got it". Clinical trial now. Running out of options. http://www.clinicaltrials.gov/ct2/show/NCT00601718?term=NCT00601718&rank=1
May 2009
It's not ending.... 4 different chemo treatments, 2 different radiation treatments, a stem cell transplant, and they still are not sure if they "got it".
October 2009
Still haven't "got it". Clinical trial now. Running out of options. http://www.clinicaltrials.gov/ct2/show/NCT00601718?term=NCT00601718&rank=1
Mother's Day 2009
Orcas Island
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Atop the Seattle Space Needle
This was a good day! Sept. '08
A Chemo weekend.
Me and my mommy.
isn't she the cutest!
Dad's Birthday 12/07
Just had a biopsy
ON THE WAY TO LONG BEACH, WA
We had lots of fun in the back seat together! March '07
May 2007 in Las Vegas
No idea what was in store for me!
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2008
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November
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- HALLOWEEN!!
- I miss my Baby Girl (sad) Breanna And Billy got t...
- Thank you Ron for taking care of my daughter You a...
- So Treatment Has Finally Began
- If Anyone Is Interested
- Thank you!
- Its Going To Be A Rough Day
- PREGNANT WHAT?????????
- So Chemotherapy Will Begin Today
- Thanks Jenny and Lizzy
- Madagascar 2
- Everything Is Finally On Track
- HAPPY BIRTHDAY DAWN
- STEMCELLS ARE IN
- Love you Ron
- A little update....
- IT WORKS!!
- Google has been warned!
- Thanks JA!
- Love You Mommy
- Day 8 of "rebirth"
- Day 9
- Day 10
- Day 12
- ISOLATION.
- Become a follower??
- Happy Thanksgiving??
- My Thanksgiving dinner. Alone..... :(
- Prison Break!!!!!
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2 comments:
I am so sorry that you have to be isolated but when this is all over and you are home and done with your treatments I bet you will have so much company that you will wish for some isolation. You do know that everyone that loves you will be smothering you with thier love when it is safe. Just imagine everyones well wishing thoughts for you there in the room with you and you won't feel so alone. I bet you will even feel a little closterphobic. :)
Much love & big hugs, Betsy
I Love you Honey When you are well we will all have to go camping and get you outside
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