SNOW!!!!!!!!

Well..... I'm home!!! Got here Wednesday the 17th..... one appointment this next week on Wednesday and then NO appointments until January 5th!!!!! Ron, Hailey, Charles, and I went sledding at Jennings Park yesterday!! So much fun. There are some great hills there. I really want to go again!!! I got the tubes taken out of my arm today. NO MORE TUBES. :) Well, we can hope.

Talk to you soon!!


Dawn

update!!

Love you guys!! Thanks for all the comments!! The scoop is I will be home SOON!!!! I am on antibiotics for a another week or so. Starting Monday I have random appointments all week, I do have a three day weekend though, which is containing packing as much as I don't need and getting it to Marysville. WHICH MEANS..... if anyone calls me there is a great possibility that I could be in town. Which brings me to The Lights of Christmas. I want to take Hailey there the weekend after this. Does any one already have a date set for going?? Leave a comment, let me know!!

I am super excited. Things won't be a perfect world for some time but I want my life to be normal. "Guess you don't always get what ya' want". Christmas..... it will be good. I can't, I'm not supposed to hug or shake hands with anyone during the Cold/FLU season. Hailey is my exception. :)

Thank you all for caring so much. It does mean a lot to me. This process isn't over when I get home and might not be for some time so please keep me bookmarked, "favorited" or just become a follower, as I am excited to continue to keep in touch with everyone while get my life put back half way together.


The donations are exceptional. THANK YOU. I can not wait until these hard times are over. I know things are hard for everyone this time of year and I think about you all. Seattle is great and all but I am not prepared to live here again anytime soon. :) I just want to go home! "There's no place like home, there's no place like home, there's no place like home......."

I seen a roll of wrapping paper at the Safeway in Seattle today and it was of the The Christmas Story. I really wanted to get it but I couldn't today.... has anyone seen it in Marysville... I still want it.

Thanks again for everything,



Dawn

P.S. Mom, Dad, Billy, Breanna.... Love you so much, can't wait to come home.

Finally A Positive Test Result

Well they have done a whole bunch of tests on Dawn over the last couple of weeks and finally got a positive test result. They found a negative gram rod in her blood cultures from yesterday. This is a type of blood infection but they aren't for sure what exact type it is. They have to grow more on the cultures to get a more pin pointed diagnosis. They have her on antibiotics and she should be ok to leave by Monday. Hopefully this will be the last time in the hospital. They are most likely going to pull her Hickman line incase the infection got in her line. They were planning to pull her Hickman before she goes home anyways due to the risk of blood clots if they leave it in. They believe the blood infection is from herself due to the conditioning of her treatment. When a person is on antibiotics for a long period of time it kills the good and bad flora in her body. When it does this any bug in her gut can get out of control and seep through the intestinal walls into her blood. So even though Dawn has to be extra cautious for the next year or so she could still give her self a bug. She is the biggest threat to herself over the next few months. LET THIS BE THE END.

Back In The Hospital

So it is official, Dawn has been admitted back into the hospital for a fever and chills. Not sure how long she will be there this time because they don't know what is wrong yet. It could be a whole bunch of things but until the results from all the tests come back, we won't know anything. The tests could take up to 5 days before they know what is happening. I am staying at the apartment tonight because Dawn is in isolation. People can still go and visit her they just have to wear a gown and gloves while in the room. I hope more people can actually get down there to see her, even if its only for a hour. It will help her with her depression and help her not feel all alone. If anyone is interested and wants to know the room number or directions just let me know.

Can Anything Go Right

Well everything has been going somewhat ok until today. Dawn woke up at 5 am with a fever and chills. I called the clinic like I am supposed to and they said give her tylenol and come in at 8am. So we did and upon getting here the triage nurse wants to know why we didnt come in sooner. I told her what the nurse on the phone said and they were't happy by her decision. As it was put to me they have wrote an incidence report on that nurse. They have no clue what is going on cause her neutrophils jumped to over 5000 today. A very large jump for 1 day. They say if it was an infection her body should be able to fight it on its own with her counts where they are. She is most likely going to have to be admitted to the hospital again because they can't get her fever and chills under control which means there is most likely something more serious going on. The only other thing they said could be going on is her body is reacting to how fast her numbers are jumping. It isn't common but can happen. Well we all know when they say it isn't common what to look forward to cause that is what happens to Dawn. I will post later tonight to update if she goes to the hospital or not.

Prison Break!!!!!

Dawn escaped the hospital today. She is at home and doing well. We have appointments everyday through the weekend. Her neutrophils where up the 580 today and they wanted her to be above 500 to be safe to leave. Normal range for most people is 1800 and up, so she has aways to go before she is out of the woods. If all goes well we could be able to move home by Christmas.

My Thanksgiving dinner. Alone..... :(

Happy Thanksgiving??

Is it really a "Happy" thanksgiving? I'm having a hard time feeling that way when you can't enjoy it with the ones you love. I miss yoo so much dear and hope you can get out tomorrow. If not I am still coming down there to visit. Hang in there a know we would be there if we could. Have a wonderful day and call whenever you are up to it. Hailey says hi and she loves you as much as a big box of chocolates. I love you too and will see you tomorrow.

Love

Ron and Hailey

Become a follower??

If you haven't already become a follower!! The more the merrier!!!! Love all of you guys!! Come join me in my adventure. Thank you everyone who has donated so far, it is a HUGE help. Living in Seattle is tough. Can't wait to come home!

ISOLATION.

It's official. I'm stuck. alone. I can leave my room and walk the hall if I wear a gown and gloves. woo. friggin'. whoo. anyone who comes in my room has to wear special gowns and gloves. CDIFF is what they are calling it. Apparently everyone has it in them and it only shows up in immunosuppressed people. Of course, I gotta get it. One nurse said 5 days stuck. Doc says 10. I'll ask the "team" tomorrow. Ron left. Went home tonight. Gonna miss him. Hard having someone so close to your side all the time just be gone. crying now. this is shitty. He's going to go get Hailey tomorrow and spend some time with her. Hopefully get the web cam up at grandma's house so I can talk to them and see them both.

Can't type anymore. Hands really hurt still.


Love you Ron. Miss you already. Miss you Hailey. Thank you Lizzy for coming and staying the other night. Thank you mom and Breanna for coming to see my that meant a lot.

Love you guys. Can't wait to feel better.


Love,


Dawn

Day 12

So today the doctors reported Dawns neutrophils have increased to 40 from 2 days ago which they were 10. She still needs them to be 500 to be safe. Also her white blood cells increased to 950 from 470 the day before. Her rash seemed to clear up on her upper body but has spread to her lower body. They also said it would probably be at least 5 more days until she is discharged. She has aquired a cough and has had alot of nausea. They think she might have acquired a cold but still waiting for blood cultures to see. Hopefully none of her visitors came down here with symptoms of a cold and didn't say anything cause that would not be good for her to get a cold right now with no immune system. We most likely will know more tommorow as to the results of the blood cultures.

Day 10

Well Dawn is still having chills and a fever off and on. Today the doctors reported that her numbers are starting to rise. Her neutrophils are at 10. They have been at 0 for 11 days . She needs her neutrophils to be above 500 so she is safe enough to leave the hospital. They are expecting, if all goes as planned, for this to happen in the next 5 to 7 days, so she could be released as soon as friday. She also has been getting a rash which the doctors are looking into. They aren't sure if it is from the medications or chemo drugs or possibly GVHD (graft versus host disease). The GVHD is not common in autologous transplants but apperently can happen.

Day 9

Well today is day 9 after the stemcell transplant. So far none of Dawn's numbers have come up. She woke up with a fever of 102.4 and a really bad bloody nose. Her platelet counts are really low again and she is getting a bag of platelets right now. Once the platlets are in she should be able to stop the bleeding nose. For now it is just pressure. She can't sniffle or blow her nose or anything cause of the potential for more bleeding.

Day 8 of "rebirth"

Hey everyone.... still in hospital. Doctors say my mouth is looking great. Had a fever last night. It finally went down. I am feeling much better today. Woke up around 7 and I am getting very tired. Judy is here, she stayed the night. Thanks Judy. I hope Ron and Hailey have fun going to see the Bolt movie today!

Love You Mommy

Hailey says she loves you and so do I.