Dawn Rising: spinal fluid

Showing posts with label spinal fluid. Show all posts

October 23, 2008

Proposed Plan by the SCCA~DATA REVIEW NOTES

October 22, 2008
Re: Dawn Robertson
Notes from SCCA data review:

Data Review Notes

My Story

My name is Dawn Robertson, I am 28 years old. I live in Marysville, WA. My daughter Hailey is 6 years old. My husband and I have been together for 12 years. He is my rock. Ron, my husband, has been so strong through our journey. But boy are things getting tough. It all started in November 2007, I went in for a random check up, I had just gotten insurance through my work. I had only went in there to have my back checked out, I have arthritic spurs in my spine, had been having a lot of pain and thought with the insurance now I better get checked out. Not being a big fan of doctor’s offices I wanted to get in and out. The doctor at the Everett Clinic insisted I have a physical, considering I didn’t recall the last time I had one he thought it would be a good idea. After a few pokes and prods the doctor feels my neck…. A good size mass is in the right side of my neck…. What’s that? I ask, I don’t know, he says…. and this begins the story of Refractory Hodgkin's Lymphoma.

May 2009

It's not ending.... 4 different chemo treatments, 2 different radiation treatments, a stem cell transplant, and they still are not sure if they "got it".

October 2009
Still haven't "got it". Clinical trial now. Running out of options. http://www.clinicaltrials.gov/ct2/show/NCT00601718?term=NCT00601718&rank=1