Thank you everyone

Thank you everyone for taking the time to find my new web address. GoDaddy.com has given us some trouble and it is not worth giving them over $90 to keep my web address. Please bookmark this updated address so, if you are interested, you can get updates on my condition.

treatment...

kicked my tush this time. Very tire today. ALL DAY. It always seems that the day after is the worst. Hopefully 2mrw will be fine. The tips of two of my fingers on my right had are still numb and tingling. It's been this way since Thursday night. The doc said to just keep an eye on it and if it gets worse to let them know. It's a side effect of one of the chemos I had. No idea which one. That's all for now.

Seattle Genetics Clinical Trial

A Pivotal Open-Label Trial of SGN-35 for Hodgkin Lymphoma

**click on title**

Shrinking!!

I can't believe it!! The are shrinking!! 11 total, 8 have shrunk and 3 have stayed the same. I have never in this whole journey gotten good news!! It's hard to believe! Got treatment yesterday. Could still get up to a year of treatments before I would be done. Anyway... success~~ I am so HAPPY!

I wish for

a Cavalier King Charles Spaniel. Tri-colored. Puppy. Anyone with access to a magic lamp, magic wand, enough money to buy one, friends of a breeder.... send them or it my way!! I need a PUPPY!

Will I ever work again?

I hope so. When? No idea. I've lost the true passion I had. I loved my job. I loved the people there. I hope they are still having a good time and laughing a lot. I miss chatting with Melinda, I miss hanging out with Judy, I miss talking to Sean in his office, I miss Kathy suggesting books and hearing about her puppy (probably not a puppy anymore), I miss Cyn for all of her wonderful honest advise on everything. Damn. I miss that place.

CT scan

Had CT scan yesterday. Will get results on the 20th when I have treatment. It was a head/neck and abdomen scan.

Hi everybody...

Had my first treatment of the clinical trial med on July 16th. My next one is this Thursday. My grandma's birthday. :( We will be staying in Seattle Thur and Fri night. Excited about that. A blood draw is required 24hr after treatment, treatment is at 4 on Thur and then back down there at 4 on Fri for blood draw. The company Seattle Genetics http://www.seagen.com/ is covering the cost of a two night stay anytime it is needed. Seattle on Tuesday to see the Pain Clinic for my back. My doc said I couldn't get injections while I am on trial so they are getting me "pain management" help for my back. That's all for now. Promise to update more.

xoxo

Dawn

cancer, cancer, cancer

well.... of course it's cancer. 4 or 5 new spots in my right lung and a couple in my left. They removed one from my left to confirm it is cancer. They will be doing a new clinical trial on me. They won't start treatments until mid July. I have to have a complete re-staging done. CT, MRI, PET, EKG, and bone marrow test. After all of those tests are done they can start the treatments. Instead of chemo it will be infusions of an enzyme to attack the cancer, 1 1/2 hrs in Seattle every three weeks for six months to a year. depending on the results. they will continue to test me during all of this to see if it is even working. after all of the treatments, if they work, after a year or so, I will have ANOTHER stem cell transplant. I go in 2mrw to sign the paperwork for the clinical trial. Then start scheduling tests and crap. Anyway. that is all for now. ttyl. love u guys.

Dawn

Surgery is scheduled.

6-11. No idea what time. They won't call me until Wednesday to tell me what time to be there on Thursday. Oh well. Nervous. I HATE surgery. AHHHH.... could be either only one night or two though. That's not so bad. I better not have to be in longer than that. UofWA Medical Center.

Went camping this weekend. Very wonderful. Just went to Lake Goodwin. Wish there had of been more sun!! Went in the lake Sat and Sun though. Wasn't so bad after you RUN in. :) It was me, Ron and Hailey, Charles was there for both nights too. Lizzy came up and stayed Saturday night. Shaun and Troy came up on Sat night too, didn't stay over but might as well have, it was sooooo much fun.

Came home to a "surprise" birthday party for me. Got a ton of wonderful stuff. Some great gift cards, my original birth certificate in a frame, baby blankets from when I was two or so, scrap booking stuff, a calendar organizer, a very nice watch, coffee cup, charms, a plant, cash and more.

Thank you everyone. I love u. xoxo Dawn

consultation

well, the consultation for surgery is scheduled for 6-3, I will be in Seattle all day. My dad is going with me. They will be scheduling surgery on that day. Not sure when it will be.... hurry up and wait. Gotta love it.

Thanks everyone.


xoxo

Dawn

Weekend

Hope everyone is having a good weekend. Went to the drive-in last night. It was wonderful!!! Terminator and Star Trek were playing. Ron and I went in the tow truck. Boy do kids just love that truck. They wave and smile and yell "hi!!!". As soon as we park here comes the sheriff. First words out of his mouth.... "you lookin' for somebody?" Nope, it was funny, "is it as bad as they show on T.V.?" Nope. That's usually every one's first question. Not that exciting. Rarely exciting. But fun.

Surgery. ASAP.

Well this sucks. So much for organic making a difference in 2 1/2 weeks. The 3 new spots GREW. Damn. The doc said I must go in for the "next available" surgery time. :( Back to the hospital. Damn. They will biopsy one of the nodes.... it could be an infection.... or cancer. Then we will go from there. I meet with the doctor 10 days after surgery. Not sure yet how long I will be in the hospital. The gal better call me today with my surgery date. I am a VERY impatient patient. Maybe I am just being cynical but I told the doctor.... "I know it's not an infection" and you want to know what his response was???????? "I know, we just have to prove it". AAAAAAAAAAHHHHHHH!!!!!!!!!!!!!!!!!!!

Comments would be nice. I know you are all checking for updates but a few uplifting words would be greatly appreciated. :)


xoxo

Dawn

TOMORROW.

Nervous about tomorrow. Should have results on newest scan by 2pm or so. My dad is going with me. All day in Seattle again. Hope it doesn't resort to that for months and months again.

Is all this worth it??

Organic, free range, no sugar, no coffee.... AHHHHH is it doing any good? It is tough. If I was single and lived alone it would probably be much easier. It really sucks though sitting at the dinner table eating a Boca burger that has been chopped up in a HUGE salad while everybody else is putting gravy on their non-organic potatoes and having some roast (red meat). AAAAAHHHHH I may just KILL for a coffee one of these days. I want a MOCHA. Thanks to everyone that is staying updated with me again. I was gone for quite a while. :) Sorry. Love ya!

Off to read a book.